First off I want to say that today has not been all that bad. About 10am this morning Nathan took .5 mg liquid oxy. I first gave him 50mg of Diphenhydramine and waited for 30 min then I gave him the liquid. This usually will help with nausea caused from the medicine. If he has nausea from high ICP there really is nothing that helps with that other than knocking him out.
I have to thank God for the fact that we have made some ground as to him telling us what strength of med he needs. He is very serious about this. Also it is again another way he feels that he is in control of his life and health more importantly.
I got some email last night asking me if I am against the HBOT n ow and I definately want to say it loud and clear I FEEL AND I BELIEVE THAT HBOT WORKS!!!!! There is nothing set in stone but this has been the only treatment that Nathan has had the most relief from.
That being said. I have been doing a lot of reading and going through my head on what else I have read. When there is brain compression due to high ICP his pituitary is flattened. I am still in the belief that he has some sort of cycling cortisol issues. I really would love to give him a little more time away from HBOT then have his blood ran for all of the hormone levels and not just the thyroid and testosterone. His sleep patterns are all messed u p. he is not getting enough of something or maybe too much of something. I am not a chemist but from what I have read this is how I am thinking. Charnel a friend of mine is a chemist. She is in NY right now recovering from fusion surgery at the moment. I will have to get with her once her brain is working again. She has been a great help with some of these issues.
It is Friday and there is a Football game tonight at home. Mark does the chains on the field so I need to get dinner done real soon. His mother was taken to the hospital today. Her leukemia is going full boar right now. She is not doing so well. We have a wedding to go to tomorrow and I am wishing to be able to take Nate with us.
I will be back later.
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