Yuck!

Last Friday was Nathan's last treatment. He felt good and both Mark and I were on cloud 9 thinking that he is going to be ok. Well by Tuesday he started throwing up again. Head pain and his behaviors are horrible. Tuesday afternoon he was so angry and nasty and he would not take any med at all from me... Then he finally decided to take some of his liquid pain med and in about 15 min he was crying. He came into my bedroom crying and apologizing at how he has been acting. I know that this is not my Nathan. He would not want to be mean to any one if he could control it. I asked him what he is feeling and he said that he feels like his brain is going to burst and the pain was so bad that he feels out of control. I went in his room and we turned on the TV for a while. Then he started throwing up again grrrrrr. It seems this week that it is a never ending cycle he is going through. Dr. Bolognese is out of town/country and so is Dr. Milhorat. Milhorat can't operate with out Dr. B and vice versa. I sent email to TCI and am waiting for the PA to call or email me back. He is not sleeping. Tuesday evening I was up with him all night long till about 4am. He then got about 2 hours of sleep. Yesterday he laid down at about 7pm and slept till about 5am. But he is saying again that he did not sleep at all. His brain is not shutting down. He was sleeping when he was on the treatments. I am in a bit of confusion right now. Is his brain just going back to auto-pilot on what it knows best? Or does the HBOT only work short term at first? I do not have the answers. If you know me you will know that I HAVE to k now the answers to things or it will drive me nuts. I guess I never grew out of the (are we there yet stage) LOL 44 years old and I still want to know why about everything. It is so hard as a parent to hold your child and have him cry and apologize to how he has been treating you and begging you to take him back to treatments. I have to call Sara's Garden to see when he can start again.

Last weekend I was sooo proud and happy of Nate. His reply to people asking him h ow he is doing he was responding saying he has felt worse. That is a big change from he has felt better. Kind of reversing the glass half empty theory.

Yesterday he did not watch TV or play any games. He did not eat much because every time he would and he would be walking around the house he was getting dizzy and throws up. His floaties are back in his right eye now too. I really think it is all to do with swelling in the tissues.

So it is a wait and see game. We are not sending him to the local public school. That is for sure. I called for information about enrolling him into the online school.

We got notified from SSI yesterday that I needed to fill out paper work so he can be determined in 15 days. Everyone says that they will turn him down the first try. We shall see on that also.

Right now that is about it for now. I will be back with more as time permits. I have received a lot of emails and I will get back to you as soon as I can.