We did 2 treatments yesterday. The past 2 weeks Nate has been having some increased pain that he needed Vicodin and Flexeril. He does not want to take the big guy liquid med but he said that he was close to needing it. No pain rages ! We did not want to wait till those started up again. His attitude and demeanor is going down as well.
We can't get back in till Friday. We will do 2 dives then and play it by ear for the next week. We want to see how we can do a booster for him.
My thoughts are he needs a good solid week of treatments. With the EDS he has so much scar tissue in the hind brain area. The scar tissue is causing flow issues. His last MRI showed that the VP Shunt is slightly over draining on the right side. But on the other hand he is having "Global" Pressures. So do we go back in the head and clear out the scar tissue, then jump into HBOT ASAP to hopefully heal faster so the scar tissue won't grow? I don't know enough about EDS to know the etiology of growth of scar tissue. So it looks like I am going to have to do some more research on this.
If anyone has any suggestions please let me know. Right at this moment I do not know any one that has used HBOT for treatment of EDS.
I forgot that last night he was dizzy. His pupils were noticeably uneven. This is the first time that I noticed this like that. I know that it is neurological but not sure what that means. I should call his ped to see or just for them to document as well. BP has been ok. Yay for that.
I will post more as we go.
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