Copy of letter to Dr F

This is just for documenting purposes.

Dearest Dr. F,
Hello, my name is Kellie Haupricht and my son, Nathan, will be 15 on March 16th. (Chiari, Tethered Cord, Pseudotumor Cerebri, suspected EDS, multiple chemical sensitivity)

Nate has been through 90+ Hyperbaric treatments and counting. We’ve witnessed many improvements in Nate since HBOT treatments. The HBOT center documents every patient thoroughly (I also documented changes at home). I don’t know if any one has ever used HBOT with EDS or Chiari. We also use Therapeutic Grade Essential Oils (TGEO) to help with wound healing. He used Lavender TGE oil on Nathan’s incisions that were not healing. He did not have one infection during the many months trying to get them healed. We owe it all to the TGE oils.

Many neurosurgeons believe he needs a debridement of his decompression site every couple of years to keep things flowing properly. We have not done this as of yet. My thoughts are that the HBOT reduces swelling and heals the body with pressurized oxygen. I can’t help but wonder if he is over shunting, thus causing pain issues opposite of too much CSF. Also what if we do get him for a debridement of the surgical site … then get him in HBOT ASAP. This would assist healing his wounds faster to deter rapid progression of scar tissue growth. What are your thoughts on this?

Judy Burkholder at Sara’s Garden www.sarasgarden.org is very interested in doing research. I first met Judy when her daughter-in-law gave birth and sadly passed away. I worked at the hospital in ICU at that time. Judy is a registered nurse. She runs a HBOT (non-profit) center and has plans to expand into more holistic medicine practices at this facility.

I would really enjoy hearing your thoughts on Hyperbarics, EDS, Chiari, and scar tissue formation. I can only imagine what a difference continued HBOT treatments would make on Nathan’s quality of life if he was free of the scar tissue and had proper CSF flow to his brain. He would have the opportunity to thrive with a promising future.

I am just a mother with a MOM degree trying to find relief for my son. Nate’s sister is showing signs of EDS (in my opinion). She has problems with her hips, knees, wrists, elbows, whatever - joint de jour. She suffers from many female issues, monthly producing ovarian cysts that pop and are very painful. I personally had poly cystic ovaries and endometriosis, degenerative disk disease, fibromyalgia and my mother had fibromyalgia and pseudotumor cerebri - I could go on and on with my sisters, etc.

Any guidance and possible assistance would greatly be appreciated! Nate’s short form medical history is attached below my signature.

Respectfully yours,
Kellie Haupricht
419-822-6049


Nate’s Short Form Medical History:
· 01/2007 he was diagnosed with Chiari I and Arachnoid Cysts on the brain stem.
· 06/25/07 Decompressions surgery at Johns Hopkins by Dr. Ben Carson.
· 3 weeks later he developed Meningitis and a triple pseudomenengeocele (sp?).
· Went back to Johns Hopkins. 2nd decompression which took twice as long debreding his surgery site due to “more than normal” scar tissue growth.
· Asked Dr. Carson about the possibility of a connective tissue disorder. He grabbed Nate’s neck skin and pulled it out and said “see he is not a Gumby so he has nothing of the sort.”
· Nate can go back to playing football.
· He did great for about 6 weeks after the 2nd decompression.
· He has a HUGE 2 inch wide keloid where he had his surgery. He started going downhill again.
· Pain rages began.
· Difficulty breathing - So severe, he just wanted to die.
· At times he was out of control. What use to be a “once in a while” thing was now a daily occurrence.
· Sought assistance from Toledo area neurosurgeons.
· Went through several LP’s and weekly lumbar drains to measure his opening and daily pressures. Opening pressure in the 40’s and higher.
· Multiple Chemical Sensitivity had severe multiple reactions to several drugs. Vancomycin, Versead, Diamox, Decadron, Latex and lastly Ambien. When reading the list of rare reactions to these meds, he had them all.
· Other drugs: Normal dosage 100mg – Nate would require 2-3 x that amount for the same relief.
· His personality and behavior problems worsened.
· In constant pain.
· Toledo neurosurgeons diagnosed him with ADHD, Autism, and on and on.
· Pediatrician did not agree with their off-the-wall diagnosis.
· Tried to find another neurosurgeon with no luck.
· By the Grace of God, some friends we were able to get Nate in to see Dr. Bolognese.
· Dr. Bolognese’s diagnosis: Chiari, Tethered Cord, Pseudotumor Cerebri, Suspected EDS, multiple chemical sensitivity.
· March of 2008 we spent the month in NY. Nate had a Tethered Cord surgery.
· He had complications that we thought were going to result in paralysis.
· A week later they found the problem and went back into the Lumbar spine to correct it and also put in a VP shunt, non programmable, medium flow in his right ventricle. Home by the end of March 2008.
· Still having pressure problems (I believe are “global” pressure issues).
· Our pediatrician did not feel comfortable prescribing narcotics for him and at the dosages he needed. Nathan hated taking them. We did work out a pain scale based on what med he took. Eventually ran out of the meds sent home with him from NY.
· Made an appt with a pediatric pain clinic in Michigan - 3 months out.
· Pain rages included falling more than before. Spoke with Charnel Jerome and she thought of trying orthostatic BP’s.
· 5 min orthos within normal range. At 60 second intervals they were off the charts! His heart rate would Jump and his BP was all over the place.
· Received referral to see pediatric Cardiologist. Spending 4 hours at cardiologist office they did EKG and a echo. Met the Doctor and he said syncope spells. I about possible POTS issues. He said that he saw no abnormalities in his EKG’s and Echo’s to point that way. I asked him what his BP was when we came in as I knew they did not take his BP at all! He gave us a Rx and I filed it.
· 07/2008, Nate was still actively bleeding from his abdomen incision, incisions on his head from the shunt, and a spot from a fall in September of 07.
· With a script from Dr. Bolognese, Nate began Hyperbaric Treatments.
· By the 4th day (8 HBOT dives) his incisions were hardened for the first time.
· By the 6th day they were healed (pictures attached).
· By the 2nd week Nathan woke up and said that he did not hurt that morning – First time he had ever done that.
· He completed a total of 40 dives at that time doing 2 per day for 20 days straight.
· Only using the strong liquid Oxydose med maybe once a week. Other than that it was 800mg Motrin or Tylenol.
· After 2 months, pain and pain rages returned.
· He had MRI’s right before he started back on HBOT treatments. MRI showed he was now slightly over draining on his right.
· 2nd set of 40 HBOT treatments.
· He felt very good and the pain level was tolerable - Best part was the pain rages were gone!
· Minimal pain meds once in a while. He does take his normal 800mg in the evenings as he has more pain toward the end of the day.
· NO pain rages since October!
· He is what we call a walking popcorn machine. Joints popping when he walks all the time. When he makes a fist it sounds like every joint in his hand is popping.
· History of several broken bones from strange falls. All fractures were in his growth plates.
· Pain came back. Started him on HBOT last week.
· Told by many neurosurgeons that he needs a debridement of his decompression site every couple of years to keep things flowing properly. We have not done this. My thoughts are that the HBOT reduces swelling and heals the body with pressurized oxygen. I am wondering if he is over shunting thus causing pain issues opposite of too much CSF. Also what if we do get him for a debridement of the surgical site … then get him in HBOT ASAP. This would assist healing his wounds faster to deter rapid progression of scar tissue growth. What are your thoughts on this?
· Spect scan before he started HBOT in July of 07.
· 40 treatments
· Repeated the Spect scan.
· Results showed several of the dead areas are now alive!
decompression site
July 07 site before HBOT
4 days into HBOT
A look inside of the HBOT Chamber